Wednesday, January 27, 2010

Floods Have Hit

As a flood of support and outpouring comes toward our family prior to the airing of "live for the moment", unfortunately, we've also had a flood and outpouring of water from our upstairs bathroom down into the ceiling of our family room.
In so many ways God tests us each day, and yet, here again, is another one of those tests. Julie and I were mad, blamefull and overall very unpleasant during the whole ordeal. It could have been a lot worse if I had been trying to explain to Julie or anyone else with able hands where the water valve was. As it happened, I was able to get to it and have my nine-year-old help me pull the panel off. Now, the carpet has been pulled back, the pad has been cut away and two of the drywall sheets have been pulled off the ceiling. In the end, the worst thing may be some cuping of the wood floor upstairs. What seems so bad at first, may not be that bad with the proper perspective.

Today I am doing phone interviews with,,

Friday, January 08, 2010

Just Some of My Thoughts to Criticism

a response to potential criticism on our intentions...

I have been a part of this forum for years now and consider it extremely important. Personnel at ALSA and ALS TDI have previewed the show and say that it is one of the best that they have seen. People in these organizations would certainly know how we all feel. "Live for the Moment" was shot almost one year ago and we're extremely grateful for the opportunity. We've received the opportunity to travel and make memories with our family, but most of all, to achieve our number one goal of raising awareness, interesting volunteers to help ALS families and hopefully additional funding to find a cure.

The show is ultimately about living for the moment even in the face of adversity or after a life-changing event whatever it may be. I thank God every day for a slower than normal progression, but since the show was shot, my arms and hands have become significantly more atrophied. My wife now helps me shower, dress and while I can start feeding myself, I usually tire fairly quickly and she finishes feeding me. No one understands better than us PALS the realities of ALS, but this story reaches a larger audience and encourages living each day to the fullest and as if it were your last no matter what your situation may be. Too many people wait until it's too late and may lose focus on what's most important in life (family) or on their dreams.

I am an enthusiastic and optimistic guy. I'm not saying that ALS is easy, but I certainly feel strongly that it cannot be dealt with when a negative attitude is present. I have done my best to bring awareness and resources toward a cure for us all. I'll await the full airing of the show to comment further and hope you will find it inspirational. In a TV world that is showing crap like "Beavis and Butt-Head" Or "Jersey Shore", etc. I for one support any show that brings hope, inspiration, focus and family to the forefront... Smile

Wednesday, January 06, 2010

The Excitement Is Building

Well, I haven't written down my thoughts in a while, but a quick update is that we are fast approaching the premier of Live for the Moment LFTM on CBS.Jeff_Probst is now on twitter now and we have been having fun promoting the show. We just watched the short LFTM web promo and a longer 2 1/2 minute TV commercial online, they both came out great. The whole process is so exciting! Of course, keeping our eye on the ball, the entire show was done in order to promote and team national awareness for ALS. We were paid nothing aside from the opportunity to travel with our family. I guess you could say we were paid with memories of some incredible events and experiences. Being the first family for this show, over 400 hours of film was collected in which our family traveled and had so many experiences that are even shown in the final cut. I'll write more about these experiences and even post some of the pictures after the show airs. Until then, "must abide by the contract"... :-)

This was dictated with Dragon Naturally Speaking ver. 10 Pro speech software. Please excuse any "Speakos" I may have made. :-)