Wednesday, November 11, 2009

My Website Involvements: How does one take charge of their own situation?

We have found ways to become involved with the ALS community. Both from a fund-raising standpoint and from an awareness standpoint. I have a very strong dedication to the ALS TDI organization due to the work they are performing and the fact that they are solely focused on a cure for ALS. I don't know of any other organization that is this large and working this hard solely on one disease. This isn't to say that patient services and other assistance isn't important as well, it is just the fact that I really want to see a cure for ALS within my lifetime of course. :-) See our personal family site below and also our contributions and involvement with Patients Like Me. PLM is a global database where patients with many different disorders can come together in one community and share their medical regimen, feelings, questions and other concerned with people in similar situations. One of the exciting elements for me, is that PLM allows you to create database queries or other filtering techniques which can turn up some fairly interesting results.

https://rogerandjulie.alscommunity.org

PatientsLikeMe member Rog

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